Today was session 25 out of 30. It was my last “normal” radiation session before “the boost” next week. And in my opinion, radiation has gone quite well! The side noticeable side effects are skin irritation and fatigue (both of which sounded doable to me after chemo). Radiation sessions have taken roughly an hour start to finish, and are M – F for 6 weeks. Here’s what the experience has been like for me:
- Week 1: Anxiety during the session itself and “fatigue”. The first few days, I felt wiped out immediately after the radiation sessions and thought it must be from holding so still in an awkward position for a long time. As it persisted, I asked the nurse if it could be the fatigue side effect I’d heard so much about. She said that would be very unusual this early on in radiation. I guess it was simply my body “coming down” after the sessions were over.
- Week 2: more anxiety during the sessions
- Week 3: Some of the irradiated skin began to itch quite a bit toward the end of the week. God gave me the sweetest reassurance, which I’ll share in a minute. It melted the anxiety, which has not returned since. I certainly had some fatigue.
- Week 4: The irradiated skin began to darken (looking like a tan). It is easy to see the exact area being irradiated. More fatigue. I was still able to live my routine, but simply felt quite a bit more tired some afternoons or evenings.
- Week 5: Session 21 was the turning point for me: the skin turned from tan to quite red all in one day. It’s not painful. It itches, is quite tender, but painful is too strong an adjective. I put Aquaphor and other lotions on multiple times a day.
On Monday, my radiation oncologist (Dr. Scott Sailer) explained the risks of “the boost” that I’ll have next week. The bottom line is that the nerve bundle that controls my left arm is immediately next to the lymph nodes that will be irradiated. Research has shown that the “tolerance” nerves have for radiation is 6,000 rads. That is almost exactly what I will be given. Therefore, I have an increased risk (which is 3-4%) of permanent nerve damage by undergoing the boost. When I asked what damage would look like, he said “well, in extreme cases, you’d lose the use of your left arm.” More likely scenarios are permanent weakness or pain, but a physician has to tell a patient all the risks, right?
As has happened at many points along this journey, my eyes filled up with tears as Dr. Sailer and I discussed the risks. It is sobering to consider the many risks of cancer treatments. I do not feel brave. But when he asked if I needed time to talk to Gabe or decide whether to move forward, I told him, “Dr. Sailer, I will certainly talk to Gabe, but if you are recommending the boost, I am doing it. Obviously, the benefit outweighs the risk to you. I want to live! I will do anything you recommend.” When I discussed it with Gabe, he felt exactly the same way.
The definition of courage is “the ability to do something that frightens one” or “strength in the face of pain or grief.” I do have the ability to do things that frighten me, like the radiation boost. I’ve done many, many things that have frightened me this year.
James 1:17
“Every good and perfect gift is from above, coming down from the Father of the heavenly lights, who does not change like shifting shadows.”
The courage I have is a gift from God, straight from our Father who loves me. It’s not my strength or power. Allow me to share the story of the turning point during the radiation journey. The moment when the anxiety turned off.
I was laying on the table during week three undergoing radiation. It is the same every day. Check-in, get changed into a hospital gown, wait for one of the four amazing technicians to come get me. Lay down on the table, turn my head to the right, arms above my head. And they do the rest. With incredible care and precision, my team lines me up with the machine. The colorful lines they’ve drawn on me (covered by Tegaderm stickers to keep the markers on during showers) are their guide. My job is to hold still and follow their instructions. They tell me when to take a deep breath, when to hold it, when to breath normally, etc.
Once the team of technicians has lined me up, they leave the room and begin the radiation session. It was only me and the Lord in the radiation room. I was laying as still as possible, doing my job! My mind was obsessing about one or two of the stickers that had shifted from the lotion. I’d asked one of the technicians about it, but could not let go of feeling like perhaps I was not lined up correctly. Perhaps I was receiving radiation in the wrong place. I was very anxious. And then, as God has done for me many times this year, he spoke so clearly and gave me peace. I don’t remember the exact words, but this is close.
Am I not in control, Leigh Anne? I love you. I will take care of you. Could I not work even in a technician’s mistake, if I wanted to?
It was the reassurance I needed to let go once again. To trust the God who loves me so much. He sent his Son, Jesus Christ, to die for my sin and to redeem my life. God, my designer and creator. He formed me, he knows me more intimately that I know myself. And he loves me so much. God has saved my life twice. Most importantly and with all confidence, I know he has saved my soul. Of second importance and in faith, I believe God has saved my physical life from cancer. Regardless of the circumstances that this broken world bring, God is trustworthy and so I can be at rest. I am at peace. What a gift from God.
Please pray with us for protection from permanent damage as I undergo the boost next week (the 5 sessions will be Tues, Sept 4th through Monday, Sept 10th). Please also pray for peace for Gabe as we await the results of a biopsy he had done on Wednesday. A periodontist did the procedure on his gums, and we were told it is either “lichen planus, cancer, or pre-cancer.” I believe we’ll have results next week. Thank you for loving us during this journey!
